Encomium: Frank C. Glenn Jr.

In the Fifties, Frank Glenn planned to join the Navy. Instead, his favorite teacher at Asheville High School told him was too smart not to go to college. She helped him get a scholarship to Wake Forest University. He met his wife, Kassiani ('Kathy'), just before graduating in 1961 and married her three weeks later. He waited until after the wedding to buy her glasses.

After the children arrived, Frank had to get a real job. He worked for Science Research Associates for several years selling educational materials to schools. During his career, his territories included five states and the military, and he earned a masters’ degree in education from the University of Tennessee. He spent the longest time of his employed years living in Lexington, Kentucky, where he was a deacon and firebrand at Central Baptist Church.

In 1994, Frank took early retirement and began his real work. He and his wife became missionaries for the United Church of Christ at Silliman University in the Philippines, where Frank taught Old Testament and Kathy taught social work. Their special projects were raising money to run water pipes to mountain to villages in desperate need of water, and founding the “One Church, One Child” foster care project.

His lifelong hobbies were music, politics, and religion. He was fondest of Bach, Mozart, and Beethoven. He was an active member of the Democratic Party and worked to support local candidates in the places where he lived, especially after his second retirement to Tarpon Springs, Florida. Religious discussions were where he excelled, however. The discovery of the Nag Hammadi Library spurred a lifelong interest in gnosticism. Later, he became a follower of John Dominic Crossan and involved with The Jesus Seminar.

Of all his achievements, he was proudest of participating in the 1960 Woolworth’s sit-ins in Winston-Salem. He was in the divinity school at Wake Forest at the time, and braved a riot on an issue of fairness and principle.

Frank Glenn passed away in Tarpon Springs on September 11th, 2012, due to complications from sarcoidosis (diagnosed in 1979) and pulmonary hypertension (diagnosed in 2005). He was under hospice care for the last six weeks of his life, during which he paid for his green burial, planned his own memorial celebration, and commissioned an elegy from Gwen Mayo (she agreed after informing him that the deceased got no editorial rights). Frank also wrote a final address to the congregation, which his daughter read at the service.

He is survived by his wife, Kassiani Glenn, and his brother, Ted (Freda) Glenn. He is also survived by his children, Sarah (Gwen) Glenn, Joel (Kathryn) Glenn, his Filipino son Phyns Fabrigar Patalinghug, adopted daughter Deborah (Stan) Karbo, grandchildren Christy McMillen, Aimée Karbo, Suzi Karbo, Travis Karbo, Charlie Karbo, Olivia Karbo, and great-grandchildren Shawn Brown and Hunter McMillen. He is also survived by his godchildren of the Andog family: Shian Mae, Kassiani, Franklenn, and Josémarie. Finally, he is survived by his uncle Jack (Eva) Glenn, his daughters Deborah, Jacque, Tina, and Vixi Jill, and their children.

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Where the Hell Did I Go?

It's been a long damned time since my last post.... because a lot has happened since, and it hasn't been good.

My father, who has sarcoidosis and pulmonary hypertension, collapsed at the end of February. The EMTs were able to stabilize and transport him to the hospital, but he will need care for the rest of his life. My mother, who has arthritis of the spine and diabetes, was unable to do this on her own.

Instead of them going to assisted care (more likely a nursing home for my father's needs), Gwen Mayo and I quit our jobs and moved to Tarpon Springs, Florida. Yes, we had a mortgage. Yes, we had years of payments left on the car we purchased in October of last year. Yes, we owe money for other stuff. But move we did. It beat leaving my mother alone and destitute after my father passes (I hope the latter will be delayed with our assistance).

We were fortunate to receive assistance, in the form of both cash and labor, from our coworkers and friends. My stepdaughter has taken over the house so the grandsons will have a place to live when they're ready for college (that day is approaching faster than I thought possible). Dad is out of the hospital and appears to be on the mend, albeit at reduced capability.

I hope to get some type of income soon. It will need to be part-time, at least during this stage of my father's recovery. Will I ever write again? Composing this blog, I hope, is a positive step.

Right now, all my brain wants to do is scream. Even after being here for three weeks.

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Pulmonary Hypertension (PH)

Today is Pulmonary Hypertension Blogging Awareness Day. Sorry if this isn't a detailed enough entry, but I thought I just had to be 'aware' this month, not blog about it.

Trust me, though, I am always aware of PH. My father has it. Not only does he have it, he has it secondary to sarcoidosis, which is a rare complication of a rare disease. I always knew he was exceptional, but he should have limited himself in this regard.

What is pulmonary hypertension? It is not the 'regular' hypertension you see in the drug commercials on TV, and it can't be measured by an arm cuff. Basically, pulmonary arterial hypertension is high blood pressure in the artery that takes the blood from your heart to your lungs... you know, where it gets the oxygen your body needs. The general cause? Narrowing/blockage of that artery or in the blood vessels of the lungs. Your body WANTS that oxygen, it NEEDS it, but the pipelines are blocked. The heart pushes harder. The blood backs up and the pressure increases. Honestly, it's easier to understand if you think of it as a plumbing problem.

Consequences? Shortness of breath and feeling faint are common symptoms. You're trying to get more oxygen into your body, but the problem is really that the blood has slowed to a trickle. Your heart may try to beat its way out of your chest or you could develop chest pain at even minor exertion. Taking oxygen helps. Dad has one of those little rolly oxygen concentrators now.

Plus, EVERYTHING tires you out. You don't have that much oxygen to work with, so your energy burns out quickly. This sucks, especially if you're impatient, a workaholic, or a general Type A person. What sucks even more? Some people with PH need medication delivered directly into their hearts. They carry a pump on their person at all times, and it has a tube that literally goes INTO your body and enters your heart! What sucks the most? Eventually, the high blood pressure will damage your heart.

Dad was diagnosed with sarcoidosis when I was 16. I'd like to say that only five years had passed since then, but you've already seen my picture. At the time, they told him that he probably had 10 years to live. He made liars of them; he's still around. In 2005, he was diagnosed with PH. The pulmonologist wasn't much help: shortness of breath? That's to be expected, considering the number of granulomas (my father calls them 'granolas') in your lungs. Come back in a year. If it's worse, we'll try prednisone again.

Bull. This wasn't the shortness of breath Dad was used to. He went to a cardiologist. The cardiologist ran various tests, and then proposed a stress test. A friend's father had died of a heart attack brought on by a stress test, so I wasn't too keen on the idea, but Dad did it. Walking? He'd done that all his life, fat or thin. Soon into the test, the cardiologist stopped him. He said he wouldn't have believed it if he hadn't seen it. My father had PH. The doc had only read about it.

Most docs don't know a lot about pulmonary arterial hypertension because it's so rare. The cardiologist didn't know much. It was a pulmonary problem, so he referred Dad back to the pulmonologist. This was the same fellow who had ignored the rapid heartbeats, the chest pain, and the drowning feeling. Dad wasn't going to go back to that 'idiot'. Since I work in CME, he thought I might be able to find better information, or at least a better pulmonologist.

My father doesn't really spend a lot of time looking up his ailments. That would involve thinking about the ailments, which causes him stress. The regular world offers us enough of that. For me, though, research eases stress, even when a quick cure isn't available. I Googled medical sites like WebMD and MayoClinic.com, and learned what I could about the subject. Eventually, I found the PH Association webpage. This is a support group primarily for PH patients and their families, but they also work with healthcare professionals to provide physician education on this rare disorder.

The site is great! It has understandable information about PH and its treatment, contact information for support groups across the country, news on PH research, and reading material you can order if you need more in-depth info (for example, for people who developed PH after taking Fen-Phen). They also had information on PH specialists, and I found one my father could see.

Since that time, which was scary as hell for everyone, my father's condition seems to have stabilized. He uses oxygen, but doesn't require a Flolan pump as of this writing. The current life expectancy for PH after diagnosis is five to fifteen years; Dad is chugging along at four. Let's hope he makes liars of the doctors again.

For more information, check out the PH Association's webpage.